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Medical Questions - Hodgkins Lymphoma by mcaanda
Started on: 07-02-2008 09:14 PM
Replies: 4
Last post by: mcaanda on 07-03-2008 08:51 AM
mcaanda
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Report this Post07-02-2008 09:14 PM Click Here to See the Profile for mcaandaSend a Private Message to mcaandaDirect Link to This Post
Found out today that my brother in law's Hodgkins Lymphoma has returned after almost 7 years of "remission" and it seems that there's some different forms of action that they are going to be taking this time around.

I guess that they are going to be treating this occurrence much more aggressively to which they say is going to really take a toll on him and are going to be admitting him into the hospital on Monday I believe for what they think should be about a week.

My question is that they have also found that his bone marrow is now toast, and are asking that his siblings ( read my wife ) to go in and be checked to see if they are a match for his cell type.

He does not have insurance, is looking / trying to get onto MEDI-CAL as he's currently w/ Kings county paying his bills for all of this.

Will my insurance pay for my wife to get tested, does the county / MEDI-CAL pay for it ( we're not even in CA ) and if not - how much are we looking at for all of this? We're so not even in a position to get into something like this its not even funny which is a super bummer being that she might be a match and could possibly save his life being that they are saying that he's needing to take care of this yesterday.

Has anybody dealt with this in the past - and what should we be looking at in dealings with this? How do they test for marrow donors, and all the other "stuff"...

The wife is super upset which is understandable and any info from someone who's been in the know would be great to know.

Thanx -

--Allen

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Report this Post07-02-2008 11:02 PM Click Here to See the Profile for Lounge DaddySend a Private Message to Lounge DaddyDirect Link to This Post
Sorry to hear about your brother in law. I actually just finished having my transplant, had it done in nashville TN at the VA med center. I have leukemia and the procedure for transplant is pretty much the same. They don't really use bone marrow anymore, they use stem cells from a related or unrelated doner and possibly even cord blood from newborn babies. It all depends on the HLA typing, whichever is the closest match that is what the docs will use. I'm pretty sure there is not a charge to see if your wife is a match if you guys use the national bone marrow registry. I had to go through total body radiation and chemo all at the same time. Got so sick I wouldn't wish it on my worst enemy. The actual transplant is basicly a blood transfusion and only takes 1-2 hours, and my sister was my doner. Without a transplant docs are looking for a remission, with they are trying to cure the disease. I had relapsed twice before I got my transplant, doc only gave me a 25% chance of survival because my cancer was so aggressive. As of now I'm 158 days post transplant and all is well. After transplant I had to stay at least 100 days so the medical team could run their tests and such.

My baby sister is my best friend and my hero, she has given me the gift of life, however long that may be. I'm still here to see my 4 year old little girl grow day to day.

If you pm me your ph# I would be happy to answer any questions you may have concerning transplantation.

Regards,
Bob
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litespd
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Report this Post07-03-2008 12:18 AM Click Here to See the Profile for litespdSend a Private Message to litespdDirect Link to This Post
My son has dealt with Hodgkin's Lymphoma twice.

Bob has it down pretty good. I can't comment on your insurance covering your wife being tested, as my son had an autologous stem cell transplant....in which, the patient's own stem cells are harvested. Your brother in law will most likely be having an allogeneic stem cell transplant....where the stem cells come from a donor. Rather than trying to explain it in my own, limited terms, you might be better off checking out a website such as this one.....

http://www.cancercenter.com...-cell-allogeneic.cfm

This will give you a better idea of what all is involved with your BIL's treatment. This is only one website...there are many out there.

As far as the problem of no insurance....there are many things you can do. My son had the same problem with his first round of treatment. We tried Medicare, which basically told us he didn't qualify as he wasn't an unwed mother under 21, or a senior citizen. We contacted the financial aid department at the University of Nebraska Med Center, where he went for treatment. They were more than willing to help us, and in the end, they ended up footing the bill for the complete procedure, along with one year of followup visits. I'm sure that he happened on a one in a million chance, but the first thing to do is to contact financial aid at the hospital your BIL is being admitted to, and see what you can do. Most hospitals will work with you, if you sit down with them and explain what is going on. Be prepared to provide just about everything but the kitchen sink to prove he needs the help, but it's always worth the shot. We were also lucky in that some of the girls that work with my wife put together a benefit for my son. They put together a spaghetti dinner, which they got donated, held a silent auction, again all donated items, and they raised more than $11,000 for him, which took care of all of his monthly bills while he was unable to work. If you have family down in that area, maybe they can put together something like that for him. There are a lot of possibilities...you just have to think outside the box on some of them.

I wish you luck. My son has been in remission now for 2.5 years. Just when I start to feel he's finally out of the woods, I hear of another story like your BIL's, and it makes me realize that he will never be "cured"...just in remission. It makes you appreciate every day and every chance you get to spend with him. We were extremely lucky....Dr. James Armitage, who is one of the best lymphoma doctors in the country, if not the world, is right in Omaha at the Med Center...and he took a personal interest in my son's case. It is definitely comforting when you have someone with those credentials in your corner.
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DtheC
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Report this Post07-03-2008 12:54 AM Click Here to See the Profile for DtheCSend a Private Message to DtheCDirect Link to This Post
 
quote
Originally posted by mcaanda:

Found out today that my brother in law's Hodgkins Lymphoma has returned after almost 7 years of "remission" and it seems that there's some different forms of action that they are going to be taking this time around.
-snip-
Will my insurance pay for my wife to get tested, does the county / MEDI-CAL pay for it ( we're not even in CA ) and if not - how much are we looking at for all of this?
-snip-
--Allen



Bone Marrow Registry usta' involve little more than donating blood, just an extra Vial?
I did it 15 years ago, no matches so far but I get a letter once a year.
At the time it was a freeby, just a little more paperwork.
And I was getting called to donate blood regularly at the time.
I wish I could be more help, things are chainging all the time. So is Funding for Data Bases?
My Mom has Parkinson's Disease, I follow advances in stem cell research, not so much outside of Parkinson's though?
Prayers, positive waves, sent your family's way.

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Ol' Paint, 88 Base coupe auto.
Turning white on top, like owner.
Leaks a little, like owner.
Doesn't smoke....... OK, we're trying to quit.

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mcaanda
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Report this Post07-03-2008 08:51 AM Click Here to See the Profile for mcaandaSend a Private Message to mcaandaDirect Link to This Post
Thanx guys, I appreciate the info, and as I look more into it, it seems that there's not alot that the possible donor has to do other than 4-5 shots to get the stem cells out of the marrow, and then a withdraw to get the good stuff out while her brother gets nuked to kill off the bad stuff. ( long short there )

Thanx again, and hopefully there's a match - their saying that its a 25% chance that a sibling has a match, and there's 4 to chose from so thats atleast a bonus...

We'll keep ya posted...

--Allen

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And it begins again...

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